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1、Remarks (in Apology to African-Americans) on the Tuskegee ExperimentMay 16, 1997Ladies and gentlemen, on Sunday Mr. Shaw will celebrate his 95th birthday. I would like to recognize the other survivors who are here today and their families: Mr. Charlie Pollard is here; Mr. Carter Howard; Mr. Fred Sim
2、monsMr. Simmons just took his first airplane ride, and he reckons hes about 110 years old, so I think its time for him to take a chance or two. Im glad he did. And Mr.Frederick Moss, thank you, sir. I would also like to ask three family representatives who are hereSam Doner is represented by his dau
3、ghter, Gwendolyn Cox. Thank you, Gwendolyn. Ernest Hendon, who is watching in Tuskegee, is represented by his brother, North Hendon. Thank you, sir, for being here. And George Key is represented by his grandson, Christopher Monroe. Thank you, Chris.I also acknowledge the families, community leaders,
4、 teachers, and students watching today by satellite from Tuskegee. The White House is the peoples house; we are glad to have all of you here today. I thank Dr. David Satcher for his role in this. I thank Congresswoman Waters and Congressman Hilliard; Congressman Stokes; the entire Congressional Blac
5、k Caucus; Dr. Satcher; members of the Cabinet who are here, Secretary Herman, Secretary Slater; a great friend of freedom, Fred Gray, thank you for fighting this long battle all these long years.The eight men who are survivors of thesyphilis study at Tuskegee are a living link to a time not so very
6、long ago that many Americans would prefer not to remember but we dare not forget. It was a time when our Nation failed to live up to it ideals, when our Nation broke the trust with our people that is the very foundation of ourdemocracy. It is not only in remembering that shameful past that we can ma
7、ke amends and repair our Nation, but it is in remembering that past that we can build a better present and a better future. And without remembering it, we cannot make amends, and we cannot go forward.So today America does remember the hundreds of men used in research without their knowledge and cons
8、ent. We remember them and their family members. Men who were poor and African-American, without resources and with few alternatives, they believed they had found hope when they were offered free medical care by the United States Public Health Service. They were betrayed.Medical people are supposed t
9、o help when we need care, but even once a cure was discovered, they were denied help, and they were lied to by their Government. Our Government is supposed to protect the rights of its citizens; their rights were trampled upon40 years, hundreds of men betrayed, along with their wives and children, a
10、long with the community in Macon County, Alabama, the City of Tuskegee, the fine university there, and the larger African-American community. The UnitedStates Government did something that was wrong, deeply, profoundly, morally wrong. It was an outrage to our commitment to integrity and equality for
11、 all our citizens.To the survivors, to the wives and family members, the children, and the grandchildren, I say what you know: No power on Earth can give you back the lives lost, the pain suffered, the years of internal torment and anguish. What was done cannot be undone. But we can end the silence.
12、 We can stop turning our heads away. We can look at you in the eye and finally say, on behalf of the American people: What the United States Government did was shameful, and I am sorry. The American people are sorry for the loss, for the years of hurt. You did nothing wrong, but you were grievously
13、wronged. I apologize, and I am sorry that this apology has been so long in coming.To Macon County, to Tuskegee, to the doctors who have been wrongly associated with the events there, you have our apology, as well. To our African-American citizens, I am sorry that your Federal Government orchestrated
14、 a study so clearly racist. That can never be allowed to happen again. It is against everything our country stands for, and what we must stand against is what it was.So let us resolve to hold forever in our hearts and minds the memory of a time not long ago in Macon County, Alabama, so that we can a
15、lways see how adrift we can become when the rights of any citizens are neglected, ignored, and betrayed. And let us resolve here and now to move forward together.The legacy of the study at Tuskegee has reached far and deep, in ways that hurt our progress and divide our Nation. We cannot be one Ameri
16、ca when a whole segment of our Nation has no trust in America. An apology is the first step, and we take it with a commitment to rebuild that broken trust. We can begin by making sure there is never again another episode like this one. We need to do more to ensure that medical research practices are
17、 sound and ethical and that researchers work more closely with communities.Today I would like to announce several steps to help us achieve these goals. First, we will help to build that lasting memorial at Tuskegee. The school founded by Booker T. Washington, distinguished by the renowned scientist
18、George Washington Carver and so many others who advanced the health and well-being of African-Americans and all Americans, is afitting site. The Department of Health and Human Services will award a planning grant so the school can pursue establishing a center for bioethics in research and health car
19、e. The center will serve as a museum of the study and support efforts to address its legacy and strengthen bioethics training.Second, we commit to increase our community involvement so that we may begin restoring lost trust. The study at Tuskegee served to sow distrust of our medical institutions, e
20、specially where research is involved. Since the study was halted, abuses have been checked by making informed consent and local review mandatory in federally funded and mandated research.Still, 25 years later, many medical studies have little African-American participation and African-American organ
21、 donors are few. This impedes efforts to conduct promising research and to provide the best health care to all our people, including African-Americans. So today Im directing the Secretary of Health and Human Services, Donna Shalala, to issue a report in 180 days about how we can best involve communi
22、ties, especially minority communities, in research and health care. You mustevery American group must be involved in medical research in ways that are positive. We have put the curse behind us; now we must bring the benefits to all Americans.Third, we commit to strengthen researchers training in bio
23、ethics. We are constantly working on making breakthroughs in protecting the health of our people and in vanquishing diseases. But all our people must be assured that their rights and dignity will be respected as new drugs, treatments, and therapies are tested and used. So I am directing Secretary Sh
24、alala to work in partnership with higher education to prepare training materials for medical researchers. They will be available in a year. They will help researchers build on core ethical principles of respect for individuals, justice, and informed consent, and advise them on how to use these princ
25、iples effectively in diverse populations.Fourth, to increase and broaden our understanding of ethical issues and clinical research, we commit to providing postgraduate fellowships to train bioethicists especially among African-Americans and other minority groups. HHS will offer these fellowships beg
26、inning in September of 1998 to promising students enrolled in bioethics graduate programs.And finally, by Executive order I am also today extending thecharter of the National Bioethics Advisory Commission to October of 1999. The need for this commission is clear. We must be able to call on the thoug
27、htful, collective wisdom of experts and community representatives to find ways to further strengthen our protections for subjects in human research.We face a challenge in our time. Science and technology are rapidly changing our lives with the promise of making us much healthier, much more productive, and more prospe
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