新编文档-Broadeningthebandwidthon‘ethics’：拓宽了带宽对“道德”-精品文档

1、GIPA and CBRBroadening the bandwidth on 'ethics'Robb Travers, PhD Wilfrid Laurier UniversityCBR and GIPACBR:Meaningfully engaging comm unity in acti oriented research part nerships.En suring comm unity control in research ideas, processes, and outcomes.GIPA:GIPA in creases the commitment to

2、ensuring that PHAs are involved in, and have some control over, HIV/AIDS research, program development, and policymakingPo引tive outcomes of GIPA: improves the quality of prevention and care programmi ng reduces stigma and isolation for PHAs enhances policy development increases feelings of personal

3、empowerment and self-worth enhances the credibility of AIDS service organizations as policy actors what's the state of GIPA in relation to CBR in Ontario?The Greater Involvement of People Living with AIDS Principle: Theory vs. Practice in Ontario's HIV/Al DS Communit y Based Research SectorR

4、obb Travers, PhD Michael Wilson, PhD Sarah Flicker, PhD Adrian Guta, MSW Tarik Bereket, MA Colleen McKay, MA Anna van der Meulen, MA Shelley Cleverly, MSC Melisa Dickie, MHSc Jason Globerman, BSc Sean B. Rourke, PhDWhat did we do?Modified a survey tool used by Flicker and Savan (2019) in Barriers an

5、d Facilitators for CBR in Canada surveys administered on-line participants invited via email conducted telephone follow-upWho did we talk to? Executive Directors in community-based AIDS organizations selected from a list of organizations funded by MOHUTC AIDS Bureau sent to 51 organizations (primary

6、 HIV man date, geographical/clie nt diversity,= 38 surveys completed (75% response rate) Phase II follow-up (25 in terviews)What did we want to know? experiences and perceptions of CBR barriers and facilitating factors for CBR challenges to implementing HIV/AIDS CBR principles PHA involvement on CBR

7、 research teamsOur framework 'input7 (question identification and MOMpdesi g 叭 'process' (data collect!or analysis 'outcome' (dissemination stages)Who's in the driver's seat? Input - academics 'The level of PHAinvolvement in the Process -outcome stagesofacademicsCBR i

8、s significantlylower than all rc 亠Other口Outcome - servicestakeholders/providersPHA engagement: Barriers and Facilitators valuing lived experienee stigma health issues training & mentoring/capacity-buildi ng cr ede ntislism trust capacity fin ancial resources/compe nsation increasing institutiona

9、l credibility/building trust accommodating people clarity in rolesCBR, GIPA and ethics? when power is shared and comm unity regarded as: initiators of research collaborators in research principal investigators in researchPrinciples of HIV/AIDS CBR1. Comm unity Drive n2. Comm unity Releva nee3. Equit

10、able Partnerships & Collaboration4 Capacity Building5. Social Determinants of Health Framework6. Multiple Forms of Knowledge7 Action OutcomesTim McCaskell - OHTN Conference, 2019"Does better representation equal more meaningful involvement?'CBR, GIPA and ethics?1 Have we been thinking t

11、oo narrowly about what constitutes ethical research principles? Are CBR principles and the GIPA Pinciple ALSO ethical principles?2. If research is the 'production of knowledge7 and PHAs (and affected communities) are not front and centre in producing that knowledge, is our research practice ethical?3 There are best prac